Author: Amber Freed
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Powerful state panel poses threat to patients with rare diseases | PODIUM
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Amber Freed An appointed panel of state bureaucrats, in the process of setting prices for prescription drugs, must focus on the real-world complex consequences of its actions on patients facing rare and chronic diseases – consequences that go well beyond cost. The Prescription Drug Advisory Board (PDAB) is one of the most powerful panels ever created…
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OPINION | Legislation endangers those with rare diseases
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Amber Freed Imagine the state of Colorado standing in the way between your son with a rare disease and life-changing drugs. That is my real-life nightmare playing out at the State Capitol. I am the proud mother of beautiful 3-year-old twins named Maxwell & Riley. They love each other, “Sesame Street” and eating blue…
